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This toolkit was developed by ´óÏó´«Ã½â€™s Morris J. Wosk Centre for Dialogue in collaboration with the Public Health Agency of Canada’s Federal, Provincial and Territorial (FPT) Public Trust and Data Literacy Working Group and the FPT Public Health Data Steering Committee (PHDSC).

Modernizing Canada’s healthcare system with standardized health data and digital tools has been identified as a key priority in the plan. This modernization involves expanded data collection and sharing, and deployment of new digital tools and AI technologies—advancements that necessitate building public trust and health data literacy. Public participation in the development and oversight of a culturally integrated health information system has been established as a core principle in the .

The Public Engagement on Health Data Toolkit is designed to support high-quality public engagement by government institutions and community organizations around the topic of health data, taking principles for broader public engagement and tailoring them to a health data context. Staff responsible for planning and implementing engagement initiatives on various topics related to health data will find concrete steps and guidance for planning and delivering engagement initiatives, including:

• Developing an engagement framework
• Selecting appropriate engagement tools and methods
• Planning for inclusion and accessibility
• Recruitment and public communications
• Informing participants
• Dialogue facilitation
• Reporting and evaluation

The toolkit offers best practices and key considerations for all these topics, as well as case studies, worksheets and further resources for generating quality engagement on health data.